Updates

Norah turns 5 tomorrow...5!  I am shocked at how fast time has gone and see such a big girl in my arms now.  She is doing so well at school and is such a little mommy at home.  We had to cancel her school birthday party (due to illness at school) but have a special birthday surprise for her tomorrow...more on that another day :)

Bella is...well Bella is Bella :)  On a daily basis I am surprised that she is only 3 and has such a large vocabulary and such a large amount of attitude!  She is overwhelmingly a love bug though and we continue our daily "snuggle time" with Mommy and Bella....love this time of day and am sad that she will also be going to school next year - I'll miss having her home but I know she is going to do so well at school.

William has been having his yearly check-ups with his Pediatric GI, and Pediatrician. 

We've gotten really good news from his Ped surgeon; his esophagus looks great and there is no narrowing at the stricture.  The Ped GI was encouraged that his reflux seems to be under control since the surgery and on his medication.  She is concerned about his weight gain since William is under the 3% for baby boys his age...so we are giving him 10 mL of Olive Oil...yes, you read right!  Olive Oil!  to see if that helps him gain weight.  We haven't had to use his g-button for food in a month and a half; but the GI doesn't want it removed in case we need to use it if he doesn't start to gain weight well enough.  We got a tip to see if he likes smoothies and so far, he loves them!  It works well because I can also put veggies and the olive oil in the smoothie along with all the fruit and it still tastes really good.

We see his Pediatrician tomorrow and have a list of questions for him as well (as we did with all the other doctors!) We are hoping for good news as he is the last stop for follow ups this month (more to come next month).

William has had a few blue spells the past couple of weeks - he isn't having dying spells thank goodness, but is having blue spells - his mouth turns blue around his mouth when he is crying and upset.  This could be nothing to be concerned over, but after speaking with the Ped Cardio-thorasic Surgeon; he wants to perform a bronchoscopy to confirm that the aortopexy is still in place.  Either way, hopefully we are able to find out what is causing the spells and that he is okay through them.

He has been doing well with his OT therapy and is pulling himself up on everything and will cruise along furniture if there is something he really wants just out of reach! 

Thank you to everyone who donated for the NSTAR's walk for Boston Children's Hospital - I reached my goal and it helped our EA team to reach the team goal!  Your donation is so greatly appreciated!

I'll post some pictures of our new garden and the girls helping with the garden - they are very excited again this year.  Since the dogs are outside most of the time, we hope the squirrels and rabbits stay out and we can actually have food to eat this year!