Yes, it is true; I am shamelessly plugging our virtual team "Team Esophegeal Atresia" on our blog. It means so much to our family to help those who helped us so much. The EA/TEF team at Children's Hospital Boston is the reason William is able to breathe, roll, crawl, eat, etc... all the things we take for granted that babies should do in their own time - William could not do because he couldn't breathe. His ENT in St. Louis tried to tell us William's tracheomalacia was inoperable and that he just needed to outgrow it. He said it was unfortunate that William continued to have blue spells and was scary that he had dying spells, but there was nothing they could do. Not satisfied with this answer, we reached out as far as we could and found the amazing CHB team who gave us hope for William. We had hope once again.
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| Princess Norah, Princess Bella, and Monster Pumpkin William outside Harvard |
The doctor's told us William could have surgery and that he could live a more normal life...that eating, rolling, crawling should not be out of his reach. The clouds parted and we saw sunshine! Most of you know that we made the trip to Boston, had the team evaluate William, and, together with their support, we came back to STL for surgery. When William was 7 months old, he breathed a more standard breath for the first time in his life! He started to roll and was able to lie on his stomach for longer than 15 seconds...it was a life changing surgery for him.
Our family is indepted to the CHB EA/TEF team and frequently call for support and to have questions answered. Without fail, the doctor's are there for support - amazing is the word that comes to mind.
Please consider donating to this organization. Since 2003, NSTAR's Walk for Children's Hospital Boston has raised almost $10 million dollars to support the hospital's patient care and research. Below is the link to my donation webpage. Thank you for any donations!
http://howtohelp.childrenshospital.org/walk/page/OE0023.htm
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