We received wonderful news this afternoon that William was able to be released. Thanks to his amazing nurse (Kathy had him yesterday and switched with another nurse to have William today!), the doctor's agreed to have him stay until 6 pm this evening (24 hours after the blue spell). The surgeon had genuine concern over letting William go home as his Tracheomalacia is considered life-threatening. Since we've been through numerous blue spells with William and are CPR certified, they agreed to release him.
We are heading home tomorrow and are going to meet my parents in Niagara Falls for the night. It's on one of the routes home and will be good to see them!
Brian has already been on the phone talking to surgeons about the aortopexy and the 2nd dilation. We met one surgeon we both liked at STL Children's who can do the aortopexy but we haven't talked to anyone yet about the type of dilation the surgeon in Boston suggested. If it can't be done in St. Louis, William and I will head back and have the procedure done here.
We are so grateful to the Lord for the guidance he gave us by directing us to such an amazing team of doctors. We feel like there is a good plan ahead for William to be able to breathe better and not have so many troubles down the line when it comes to eating. If it weren't for the knowledge and specialization of the team at Boston Children's; we wouldn't be in this new position.
As Brian mentioned, we are extremely thankful for our families and friends for their continued support for our family of 5.
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